Living with Waldenstrom’s macroglobulinaemia (WM) can be a deeply challenging experience, not only for those diagnosed but also for their loved ones. WM is a rare, incurable form of blood cancer affecting around 4,000 people in the UK, with men disproportionately affected. The physical toll of WM is only one part of the story—its psychological impact can be just as significant, yet often less visible.
From the anxiety of waiting for test results to coping with side effects and the day-to-day effects on their work, family, and social lives, many are left navigating a maze of uncertainty. A recent survey by WMUK revealed that 37% of patients and 50% of their loved ones feel anxious about what the future holds. For men in particular, these feelings can be compounded by societal stigma and pressures that discourage them from seeking help or opening up about their struggles.
Addressing Barriers to Men’s Mental Health Support
At WMUK, we are committed to supporting everyone in our community not only with the medical information and guidance they need but also with their mental health and emotional wellbeing. We understand the specific barriers men face in reaching out for support—cultural expectations, fear of being judged, and the stigma around mental health often prevent men from voicing their concerns.
To change this, we are working to create safe spaces where men affected by WM can connect, speak openly about their challenges, and access the help they need. Breaking down these barriers is essential, not just to improve quality of life but to foster hope and resilience amid the struggles of WM.
Partnering with Tough to Talk
This is why we’re proud to partner with Tough to Talk, an initiative dedicated to raising awareness about men’s mental health and breaking the stigma around male suicide. Together, we’re working to ensure that men affected by WM—whether living with the diagnosis themselves or caring for someone who is—have the tools and resources to take care of their mental wellbeing.
We’re hosting an online meeting for men in the WM community to provide a space for open conversation, mutual support, and practical advice. Attendees will have the chance to learn about mental health resources and discuss actionable ways to improve their emotional wellbeing.
Date: Thursday, 30th January
Time: 7 PM to 8 PM
Platform: MS Teams
Who’s invited: Men affected by WM
Sign up link: Breaking the Silence on Men’s Mental Health and Waldenstrom’s Macroglobulinaemia (WM) | TOUGHTOTALK
This session is all about breaking the silence. It’s about ensuring men feel seen, supported, and empowered to take that first step toward better mental health.
How to Get Support
The impact of WM—both physical and psychological—can feel overwhelming, but you don’t have to face it alone. Our skilled nurses are here to offer guidance and support through the WMUK Support Line. Whether you need advice about your condition or someone to talk to, we’re just a phone call or email away.
Phone: 0300 373 8500
Email: support@wmuk.org.uk
Together, We Can Make a Difference
Living with WM doesn’t have to mean living in silence or isolation. By addressing men’s mental health and taking collective action to break down barriers, we can create a stronger, more connected community. Whether it’s joining our online meeting, reaching out for support, or simply starting a conversation, every step forward matters.
At WMUK, we believe in surviving with WM and living well alongside it. Together, we can make that possible.
About the author.
Beth is a qualified nurse with 12 years of experience. Her role at WMUK encompasses engaging and supporting the WM community, from connecting patients and loved ones to the right kinds of information and support they need, to how they can also get involved in supporting WMUK too.
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